Category Archives: Ehlers-Danlos

How long?

Yes, it’s been that long. Almost a year. A year of many changes. I moved into my new apartment. After we got rid of the roaches the previous tenant had kindly left behind. I was not amused. This apartment isn’t … Continue reading

Posted in Cats, Chitchat, Ehlers-Danlos, Kitchen/Pantry | Tagged | 2 Comments

Starting over

I guess I should apologise for not posting in just about forever. I guess I should also promise to better my ways and post at least once a week from now on. So, I apo… Oh, who am I kidding? … Continue reading

Posted in Ehlers-Danlos, Random reflections | 5 Comments

Finally fixed

Way back in December I applied for a wheelchair with add-on drive. In January The Mighty Ones sent two of their puppets over to see if I really needed it. Now, why in seven hells would I want a wheelchair … Continue reading

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Not a car

Hello world! Here I am again, and I’ve got possibly the best news so far this year. I got myself a nice little vehicle. An early birthday present from my inlaws. How about that? Though it may look like it, … Continue reading

Posted in Ehlers-Danlos | Tagged | 10 Comments

Lullaby

The other day, I wrote a lullaby for one of my EDS-friends, for we’re no strangers to sleepless nights. lullaby the sheets are clean the pillows fluffed and night’s song fills my ears curled up on the blankets a little … Continue reading

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Bendy

May is Ehlers-Danlos Awareness Month, so here’s a little poem I wrote about EDS the other day. bendy fingers dislocate countless times a day shoulders sublux only twice or thrice doorframes pop up out of nowhere to bar my way … Continue reading

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Rare Disease Day: Ehlers-Danlos

Today is Rare Disease Day, and since I have Ehlers-Danlos Syndrome, which is a rare disease, I thought it fitting to write a blog post about it. Most people, including professionals in the medical field, have no idea what Ehlers-Danlos … Continue reading

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